This week we're rereleasing my interview with Brooke Eby, who passed on October 1st after her powerful public fight with ALS. Brooke turned a terminal diagnosis into a platform for humor, visibility, and fundraising.
In this conversation we talk about her journey from her first limp at 29 to diagnosis at 33, the dating-with-a-cane content that put her on everyone's TikTok, why she worked so hard to put a young face on an "old man's disease," and how a single Salesforce LinkedIn post turned into a half-million-dollar fundraiser and a nonprofit. Brooke always asked people to do one thing: give money so ALS research can finally move forward. Please donate at als.org in her memory.
Takeaways:
ALS research is still painfully underfunded.
90% of ALS cases are NOT genetic.
Brooke's genius was making a terrifying diagnosis approachable.
"You should always just ask." Brooke didn't want people walking on eggshells.
ALS Together, is a huge part of her legacy. Visit alstogether.org to learn more.
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Knoword is an online tool for creating fun vocabulary games. Visit Knoword.com to learn how it fits into your classroom.
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Teachers’ night out? Yes, please! Come see comedian Educator Andrea…Get your tickets at teachersloungelive.com and Educatorandrea.com/tickets for laugh out loud Education!
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Don’t Be Shy Come Say Hi: www.podcasterandrea.comWatch on YouTube: @educatorandreaA
Human Content Production
Chapter:
0:00 - Tribute to Brooke Eby
2:15 - Meeting Brooke
4:48 - First Symptoms
8:21 - ALS Misconceptions
13:36 - Salesforce & Advocacy
26:41 - ALS Resources
36:35 - Funding & Trials
47:00 - What NOT to Say
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