In Memory of Brooke Eby: The ALS Advocate Who Made the World Laugh

This week we're rereleasing my interview with Brooke Eby, who passed on October 1st after her powerful public fight with ALS. Brooke turned a terminal diagnosis into a platform for humor, visibility, and fundraising.

In this conversation we talk about her journey from her first limp at 29 to diagnosis at 33, the dating-with-a-cane content that put her on everyone's TikTok, why she worked so hard to put a young face on an "old man's disease," and how a single Salesforce LinkedIn post turned into a half-million-dollar fundraiser and a nonprofit. Brooke always asked people to do one thing: give money so ALS research can finally move forward. Please donate at als.org in her memory.

Takeaways:

• ALS research is still painfully underfunded.
• 90% of ALS cases are NOT genetic.
• Brooke's genius was making a terrifying diagnosis approachable.
• "You should always just ask." Brooke didn't want people walking on eggshells.
• ALS Together, is a huge part of her legacy. Visit alstogether.org to learn more.

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0:00 - Tribute to Brooke Eby 2:15 - Meeting Brooke
4:48 - First Symptoms
8:21 - ALS Misconceptions
13:36 - Salesforce & Advocacy
26:41 - ALS Resources
36:35 - Funding & Trials
47:00 - What NOT to Say

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